National Physician and Family Referral (NPFR)
Local and National Partners include: Center
for Information & Study on Clinical Research Participants
(CISCRP), National Black Leadership Initiative on Cancer (NBLIC),
National Human Genome Center at Howard University (NHGC), Coalition
of African American Networks (CaAN), CBO Coalitions that are part
of NPFR’s national network.
Cancer 101 Dinner Lecture Series
In each targeted city, in collaboration with Medical Hosts, staff,
local community leaders, ministers and distinguished community
panel join celebrities in discussion on prostate cancer and cancer
topics. These topics include community responsibility for education
and participating in programs designed for prevention, discovery
of treatment options, quality of life and other diseases which
affect African Americans. . Hospital, public health and local
Cancer Center and patient advocacy representatives serve as guest
facilitators. Other related topics, which are discussed, include
racial disparities in prostate cancer education and other diseases,
which affect African Americans. NPFR will coordinate all annual
follow-up with community leaders and organizations signing up
for distribution of health education information from NPFR and
it's Medical and Research partners.
CISCRP (Center for Information and Study on Clinical
CISCRP as partner will help develop ongoing local public awareness
programs, which highlight key education and outreach issues and
education regarding the clinical research process.. Topics include
a basic overview of the clinical trials process, risks, benefits,
rights, protections, issues regarding informed consent, and the
importance of minority participation in clinical research. Presenters
include physicians, study staff and patients who have participated
in clinical research and studies.
NBLIC (National Black Leadership On Cancer)
As cancer information partners, NBLIC will provide surveys and
educational information to better gauge attitudes which affect
African Americans outreach for health education.
NHCG (National Human Genome Center)
Howard University's National Human Genome Center helps NPFR develop
surveys to investigate social attitudes about cancer, diabetes,
hypertension and other diseases which affect African American
families. Various departments offer speakers and information on
the importance of Human Genome Research Education to African Americans
done by an African American University.
Proposed Partnership Collaboration Program:
NPFR will develop with its partners a joint customized program
to be delivered as part of the NPFR Dinner/Lecture series on Cancer
and other NPFR programs and events developed outreach education
for Diseases affecting African Americans.
Audiences: African American males, African American
Physicians, study staff, community leaders (political, spiritual)
community health representatives, Partner representatives, health
education experts, prostate cancer and cancer survivors, study
NEW!! Clinical Trials Education
and Awareness PARTNERSHIP
…Learn how diseases that affect men over 50 make a
difference in the quality of life and intimacy
...FREE Breakfast and Lunch to participants
...FREE Parking and easy access to facility
...Educational literature on all Disease Segments
...OPEN Question and Answer Segments for you to ask YOUR own
...FREE SCREENING: Diabetes, PSA (Prostate), Cholesterol,
High Blood Pressure and
...FREE Obesity and Smoking Counseling
The Cancer Survivor Guide
Series (and Prostate Cancer 101 Survivor Guide Seminar) is part
of a community-based partnership which utilizes community resources,
leaders and networks to educate community and media participants
about cancer and the importance of clinical trials education.
NPFR has in place PC CaAN (Prostate Cancer Coalition of African
American Networks), and CBO Coalitions for ongoing distribution
of educational materials, articles, speakers and African American
"What an absolute joy it is to recognize and discuss with
you the plans and progress of the National Physician & Family
Referral Project in establishing a coherent network of community-based
contacts for partnering in human genome research. I am especially
excited by your plans to develop the Community-Based Organizations
Coalition to promote and increase the participation of African
Americans in biomedical research projects. Congratulations also
on your success initiating the web-based physicians and African
American families database as a resource for connecting "grass-roots"
community based organizations with the biomedical research community
and the new Prostate Cancer Survivor Guide Seminars Series.
Here's hoping that "your cup will overflow" and together
we can empower our community to become partners in human genome
research to FIND THE CAUSE of prostate cancer. Best wishes for
Georgia M. Dunston, Ph.D.
Professor and Chair
The National Human Genome Center, Howard University
There are three community components in each event:
Survey related to disease information and access
Survey looking at knowledge and understanding; fears and apprehensions
about clinical trials
Follow-up programs for organizations who volunteer to be a
part of the CBO Coalition to distribute, print, publish and
circulate educational information about African American health
issues and educational materials about clinical trials and disease
and product breakthroughs.
A NEW program designed for
patient education featuring doctors, and pharmaceutical companies
discussing prostate cancer treatment options, BPH, Erectile Dysfunction
and quality of life.
HOW CAN WE PARTICIPATE IN THE RESEARCH AND NOT JUST THE TREATMENT??
Specialists in the field will provide education on research participation
readily available in our community.
Background and Description of Program
50 Hoops® and The National Physician and Family Referral (NPFR)
Project has updated its program to address a broader scope of
educational offerings related to Urological cancers affecting
African Americans. The 2005 - 2006 community outreach includes
prostate, kidney, colorectal, lung and breast cancers. Some of
these cancers are becoming more prevalent among African American
families, therefore, community participation in the educational
process will be heavily addressed.
Over the past four years, 50 Hoops®/NPFR has partnered and networked
with dozens of African American and Cancer organizations to “help
find the cause” of prostate cancer. Our partnership with
the National Human Genome Center at Howard and other Human Genome
Centers has offered us a vehicle for recruitment of African American
families with a history of prostate cancer who volunteer to be
a part of this historic undertaking.
Our four-year data clearly defines family history (of prostate
cancer and other diseases) which affect African Americans. It
is because of this data that NPFR’s outreach has expanded.
NPFR has developed an “in your face” approach to
Urban cancer education and outreach, which is unmatched (in outreach
scope) by any other organization targeting African Americans.
Our partnerships with medical educational groups, hospitals, cancer
organizations, celebrities, labor forces, State-wide African American
Expos and conventions, allows us to communicate effectively among
In 2004, NPFR began forming ongoing CBO (Community Based Organization)
Coalitions in cities with high African American populations, utilizing
existing local cancer and community health organizations in our
target communities. NPFR also formed "PC CaAN" (pronounced
PC CAN), which stands for Prostate Cancer Coalition of African
American Networks, which offers a strong base for educational
grants targeting cancer and racial disparities.
The Prostate Cancer 101 Survivor Guide Seminar Series focuses
upon these new community-based partnerships and will utilize all
of it’s resources and networks to educate communities around
the country about prostate and other cancers, and develop strategies
for ongoing organizational education through constituencies.
These sessions will be facilitated by Medical Professionals,
Local Celebrities, Survivors, their wives, and the widows of prostate
cancer patients. Our objective is to encourage ongoing strategies
for support of local strategies for revealing racial disparities
which prevent individuals from taking the initiative to seek educational
tools available within the community, and to begin to evaluate
and coordinate this concept with participants.
The Survivor Guide Seminars bring in celebrities, community leaders,
media and churches to promote education and "health"
networking within their own organization. Also neighborhood outreach
programs are encouraged and focus groups to gauge racial disparities.
These tools will be designed to promote better communications
between African Americans and health care organizations, utilizing
local leader constituencies as substructure for this outreach.
The overall strategy includes (1) Educating key community and
religious leaders , as community partners, to help design models
for future community participation and engagement in this process
through the Seminars. (2) Utilizing the NPFR 's Community Based
Organizations (CBO Coalition) and the PC CaAN to resource these
constituencies. (3) Educating Leaders' constituencies in acquisition
of tools available within the health care system for understanding
prevention and treatment options for prostate cancer.
Local Urologists and medical professionals working in hospitals
and university medical centers in prostate cancer (and other ethnic
diseases) will assist in facilitating this Series and helping
to design better outreach to break down barriers of racial disparities
within their communities.
A Health Fair component implemented within this Series will
include a variety of screening and education about Urological
cancers and diseases critically affecting African American health.
National Prostate Cancer Basketball
Tournaments & Health Fairs is now a Radio-One
Affiliate Event. Learn more.
Coalitions, Networks and Partnerships
As we move into our 10th Anniversary, we
are proud to say that 50 Hoops has benefited
many communities and saved hundreds of lives
directly and indirectly. Over the years,
we have developed partnerships, networks and
coalitions, which in 2008 – 2010 will
expand into nation-wide coalitions for education
and benefit of prostate cancer research. Here
are a few comments about 50 Hoops—AFTER
we’ve left the community: Coalitions,
Networks and Partnerships
is now a registered trademark.
We’ve been around since 1998, and now we’re an official
Men's/Women's Basketball: Men aged 30 – 49 play basketball
to win customized trophy and prizes
Women, aged 21 – 39 also play for prizes and gifts.
Player Registration $15.00
Team Registration $50.00
Men’s Health – Focus on prostate
cancer education, support groups and men’s health issues
including colon cancer, impotence, exercise and fitness, featuring
local prostate cancer survivors and physicians.
FREE prostate cancer screening on-site, hosted by local hospital.
Education – Information regarding breast
and prostate cancer and their high incident rates within the same
family, clinical trials education with Q&A; partnered with
local Cancer networks.
Heroes, Heroines & Superstars: Prostate
Cancer Survivors, patients and their families are spotlighted
at games and workshops to tell their story of fear (of screening,
diagnosis), of learning about treatment options, and benefiting
from their prostate cancer education.
NPFR Community Based Organization (CBO) Coalition.
Prostate cancer networks and local coalitions united for medical
and human genome research and education
NPFR PC CaAN (Prostate Cancer Coalition of African
BOOK A 50 HOOPS®
Interested in bringing
50 Hoops® Event to your city? Complete this form to
have a representative contact you.
Fill out this form
or Call 800-677-8429
Keep in mind it takes 6-9 months preparation time
50 Hoops® Event
Local Honored Family: Three brothers, all from city/;state, who
all have had prostate cancer, or breast, kidney, colon, bladder
cancer. Their biological Sister(s) and/or wives who are cancer
survivors will be the feature of the program.
This prototype will be used in all cities, utilizing local "Brothers"
and NPFR sponsored celebrities for educational impact.
City Sponsor should provide a banner and educational materials
related to Cancer, Cancer clinical trials and product development.
Identify core prostate cancer and African American
community organizations to serve as a Coalition to focus on
locating African American and Black families with history of
prostate cancer. Through these Coalitions of local organizations,
NPFR will facilitate direct collaboration with doctors and scientists
working in National Human Genome Research. This community participation
in the outcome of prostate cancer research is an historic undertaking,
and has the endorsement of National Human Genome Center at Howard
University and collaboration with dozens of other centers working
on Prostate Cancer and other diseases which strongly affect
the African American and Black communities across the country.